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Breast Cancer: Stuff They Never Tell You

Survivors are part of a sisterhood, whether they choose to be or not. And sharing stories–funny, sad, ironic—is what sisters do best.

I was diagnosed with breast cancer in 2007.

Hearing the words, "I'm sorry, but it's cancer," comes as a shock to anyone, and I never thought I would hear them that day.

I was in my mid-40s, a marathon runner, healthy eater, non-smoker, no family history. The only real risk factor I had was giving birth to my first child after age 30.

I cried (hysterically), I went for a long run the next morning, I got a second opinion, I told only a handful of people and I went about my busy life trying not to think about it.

I made a list of other women I knew who had fought – or were fighting – this awful disease. In a few moments, I came up with more than 15 names of women in my community, most of whom were right around my age. Clearly, I was not alone. If I made that list today it would be at least twice as long.

As a journalist I have an ability to reach an audience greater than just my personal circle of friends. I thought then about how I could have an impact on this new "sisterhood," and those who would (unfortunately) join it in the future.

In the past five years I've helped publish numerous articles, written about my own experiences, promoted early detection, attended and written about mammogram parties, and have willingly been interviewed by several area TV stations.

When I interviewed Barbara Delinsky last year regarding the release of her 10th anniversary edition of "Uplift: Secrets from the Sisterhood of Breast Cancer Survivors," I realized that indeed I was part of that sisterhood.

There is so much more I could say – and write – about the experience of being diagnosed and treated. I could write about running the Race for the Cure just six weeks after my lumpectomy, or running the National Marathon to Fight Breast Cancer just 11 months after my diagnosis.

I could also talk about the things they never tell you: that the radioactive/blue dye cocktail that's injected as part of a sentinel node biopsy (performed along with a lumpectomy) turns your urine blue for the next day or two and sets off the security alarm going in and out of the drug store when you are just trying to pick up your painkillers.

Or, that getting radiation also involves getting a few tattoos. And getting marked up by Sharpies. If I had known, I would not have worn my brand new white shirt that day!

Most of what I'd like to say is if you hear those dreaded words – face it fighting. When you're diagnosed you have a disease. The best thing you can do is fight it, the best way you know how.

Talk about it if you can, and share your story. If you help just one person get an early diagnosis, you will have had an incredible impact on another's life.

Walk for the cure. Run for the cure. Support your friends and neighbors.

I ran home from the hospital after one of my radiation treatments. Just because my doctor said he never knew of anyone else doing that before, and because it was one of the ways I chose to face (spit in the face of) this disease.

A few weeks ago I modeled with other survivors in a fashion show that was part of a "Pink Party" fundraiser for Komen Connecticut. I'll have to say I was a little bit nervous about strutting across the stage in dangerously high heels and wiping out in front of a much larger crowd than I had expected.

"Who cares. This is our night. This is celebrating what we have all gone through," said one of the other models/survivors. She was right. Sharing that experience with those other women was so empowering.

I didn't want to join this sisterhood. But I am proud to call all of these women my "sisters."

Earlier this month, women throughout DuPage and Kane counties shared their experiences with breast cancer.

Now it's your turn. What is your story? What is something you experienced or learned about breast cancer that people don't normally talk about? Tell us in the comments.

AUSPICIOUS ! November 1, 2012 at 10:43 am
Survivors God Bless you all !!!
Thanks for sharing your story, a lot can be learned from it. AUSPICIOUS !!
bill trudeau November 1, 2012 at 02:04 pm
The thing I've learned in the last few years is that cancer is NOT pink, as you'll find out when you get prostate, pancreatic or lung cancer. Cancer isn't something to be packaged in pretty colors and merchandised by foundations that could care less if a cure is ever discovered, as long as the bottom line is healthy.

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Share something with your neighbors. Write a new post... What's up? Make an announcement, speak your mind, or sell something
Nancy June 14, 2013 at 05:03 pm
Who monitors these posts? This town has some strange birds! I think too much limestone dust??
2012 Market
Susan Atkinson June 9, 2013 at 07:03 am
I went to the Farmers' Market on River St. this Saturday and was very impressed. It looks so nice onRead More the newly refurbished River St. Had some gelato at the new restaurant O' Sole Mio and it was very good. Love the new location for the Farmers' Market! Downtown Batavia is Rockin!
Curt Rice June 7, 2013 at 04:03 pm
My schildren were asked to take this survey and both did. If the school board wanted an accurate andRead More fair assesment on what is going on at the school the would have eliminated the students name at the top. How many highschoolers do they really think were going to admit to using alcohol of drugs with their name embossed right on top?
Jeff Johns June 7, 2013 at 08:47 pm
A survey.....A survey with the student's name in on it asking them to admit to illegal activity?????Read More How can school administrators approve this before it was implemented. The trust that students have with their teachers and counselors has been breached and this has turned into a farce. (This reminds me of my fifth grade PE teacher who had me and over 60 of my classmates right certain letters on paper taped on the bathroom wall when someone wrote 4 LETTER WORDS above the urinals. No ones writing matched. Don't figure) Although there are many students that could benefit from counseling or intervention thinking that they would come forward through a piece of paper is....well, not smart. I attended public schools my whole life and never heard of anything like this. I compliment the teachers and counselors at BHS for the outstanding education my child has received. Constitutional rights or not this was just wrong. I support and thank the teacher for conveying this to the students. How many other teachers were put in an ackward position instructing there students to take the survey? How many reviewed this with there department heads and principals? This is being hushed by 101. Administrators and School Board, you need more communication with your teachers and potential implications to students. Very Embarassing....
Nancy Murphy June 14, 2013 at 01:00 pm
This entire ordeal has made national news and consequently, the Batavia USD 101 looks ridiculous -Read More at best - downright evil at worst. It was on the Drudge Report and went viral on-line: http://chicagolampoon.blogspot.com/2013/06/batavia-usd-101-educrats-piss-on-us.html Thanks for the info as to the 1 intellectually honest board member, Jon Gaspar - the rest can't really be considered real Americans.